Katie was born with an enlarged brain
Katie was born with an enlarged brain — a rare condition called megalencephaly.
Some people judge. Some whisper. Some even blame her family for bringing her into this world.
But they don’t see what truly matters.
Katie is loved beyond measure
She is cherished, protected, and surrounded by a family whose hearts are bigger than any diagnosis.
Her life is not a mistake.
FLORIDA – 24 MARCH 2017: Katie Renfroe poses for the camera as she enjoys the local park in Florida, 24 March 2017.
NINE-YEAR-OLD Katie Renfroe suffers with a condition so rare that it doesnít even have a name. Katie was diagnosed with megalencephaly at birth, a growth development disorder characterised by the overgrowth of the brain. However, this diagnosis does not explain the other symptoms that Katie experiences and doctors have said her mystery condition is so rare, they are unable to identify it. Angie Renfroe, Katieís mother, has been awaiting a full diagnosis of her daughter ever since her birth and doctors have started to discuss the possibility of naming the unknown condition after Katie.
PHOTOGRAPH BY Ryan Vanderploeg / Barcroft Images
London-T:+44 207 033 1031 E:hello@barcroftmedia.com –
New York-T:+1 212 796 2458 E:hello@barcroftusa.com –
New Delhi-T:+91 11 4053 2429 E:hello@barcroftindia.com
www.barcroftmedia.com
Her existence is a blessing
And love — real love — needs no explanation
